Over the past few years I have been caring for my daughter who has Lyme disease, who with hindsight started to become ill about ten years ago.The disease is caught by having an infected tick bite, usually carried by deer. It’s a horrible disease that attacks every system in the body, causing neurological and autonomic symptoms as well as problems with the immune system. Because everyone is different, we all have our weaknesses, therefore aside from general Chronic Fatigue each person has their own set of health issues to deal with. This means there is no set means of treating Lyme.
My own work comes from personal experiences of landscape, primarily in the UK. In response to my daughters ongoing battle with the disease I have been re-thinking how I see the places and elements that have a specific significance to her story.
Frustrated by lack of understanding and support from the medical establishment, my daughter embarked on a course of treatment at a private hospital in Hertfordshire. Whilst staying nearby I spent some time walking small sections of the The Ridgeway National Trail. This piece is made using an image taken close to Ivinghoe Beacon, collaged with the Borrelia bacteria photographed under a microscope. The virus is everywhere, yet unseen.
My daughter remembers being bitten by a tick in Ashton Court Estate whilst still at school. At that time we knew nothing about the dangers of tick bites or of Lyme disease. The piece collages the location where she was bitten, the Deer park nearby and again the Borrelia bacteria. That moment created a fissure in my daughters life and family life in general; a fissure that continues to widen.
I see you – Video (6 mins) (2017)
Using an Infrared (IR) camera the film captures the tentative and intimate nocturnal wanderings of wild deer, but also the voids where no deer were seen. I am torn between being in awe of the beauty and secrecy of these animals and feelings of anger at how unwittingly they spread such a dreadful disease.
The artworks I have made don’t aim to give any answers, as I have none, but merely to raise awareness of the hidden danger of Lyme. I will continue to add to the body of work as and when we hit milestones in the path of my daughters recovery.
For more information on Lyme disease, please visit the Lyme Disease UK website